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About Chronic Fatigue Syndrome and Fibromyalgia
Today we’re going to talk about my Chronic Fatigue Syndrome and Fibromyalgia. If you’re a viewer on our YouTube Channel or if you follow us on our website, Pinterest or Facebook, you’ve probably heard me mention something about being sick from time to time. Perhaps you’re wondering what Chronic Fatigue Syndrome and Fibromyalgia are or maybe you wonder if you or someone you know might have it.
This video is not meant for you to diagnose anyone. I’m only sharing my experience to illustrate what I mean when I say, “I’m sick” and also to give you some idea whether you might want to talk to your doctor if you wonder if you might be affected by one of these.
Chronic Fatigue Syndrome is not well understood. It is a debilitating condition that affects me every day.
The Centers For Disease Control says:
“Chronic Fatigue Syndrome, or CFS, is a debilitating and complex disorder characterized by profound fatigue that is not improved by bed rest and that may be worsened by physical or mental activity. Symptoms affect several body systems and may include weakness, muscle pain, impaired memory and/or mental concentration, and insomnia, which can result in reduced participation in daily activities.”
I was part of one of the early long term study groups for the Centers For Disease Control.
There are no known treatments, but I have discovered a few things that ease certain symptoms when I’m experiencing a flare.
Fibromyalgia often accompanies Chronic Fatigue Syndrome. The Mayo Clinic says, “Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues.”
In my experience, this doesn’t sound as bad as it really is. When you have Fibromyalgia, it does come with a substantial amount of pain, with a number of muscular trigger points in various spots on your body where the greatest amount of pain is concentrated. There is also a great deal of mental confusion along with memory and consistently negative mood issues related to living in a state of continual pain.
We have found some things that help my Fibromyalgia, like frequent massage.
Fibromyalgia can be improved with exercise, but I also have Chronic Fatigue Syndrome, which is made much worse with exercise.
Here are some of the points we discuss in this video:
0:47 A lot of people ask me how to know if they have Chronic Fatigue Syndrome or Fibromyalgia
0:53 Symptoms of CFS
2:04 Symptoms of Fibromyalgia
3:40 My mom, brother and I got sick in 1988. We all came down with “the flu” and never got better. My mom and brother both have Chronic Fatigue Syndrome, but I’m the only one that has both CFS and Fibromyalgia. They’re two totally different things that often go together.
4:18 Discussion of difference between CFS and Fibromyalgia from an external perspective.
4:58 We discovered that Alka Seltzer makes Tawra feel better when she is having a CFS flare.
6:58 I got sick when I was 16. I was so sick every day and I often couldn’t get off the couch, so I was missing work and I just couldn’t support myself, so when I was 19, I got on disability.
7:24 It was super hard to get on disability.
7:49 People see the website and say, “How do you do all that?” I don’t.
8:29 I have to give up things. I can’t do it all. If I’m doing videos or something for the website, it means I can’t keep up with the house and I’ll probably be too sick to make dinner.
8:58 Mike says Tawra gets confused or irritable. She can’t remember basic details at times. Mike is good at recognizing the problem and being patient with me.
10:43 My neighbors were alarmed when we first moved in because I would lay out on our driveway when my son was riding his bike.
11:33 It helps to joke about it and brush it off, rather than getting angry. There’s nothing you can really do but humor makes it more tolerable.
11:46 In our next video, I’ll share some of the things that help me function.
11:54 You can get more information about the symptoms on our website here:
About CFS and Fibromyalgia
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